So, my initial feeling of having to do the 10% dose reduction of KADCYLA last infusion was a bit of defeat and fear. I wanted any and all cancer out, period, and initially thought I’d do anything to make that happen.
It was when my oncologist said “You’re 39 and we don’t want you to have to live with debilitating peripheral neuropathy for the rest of your life.” that it made sense, but still felt like a loss.
Fast forward to today. I am no longer dropping things and can feel my fingers. My toes are no longer aching and numb. In fact, all of the nerves in my body seem to be waking up. Parts of me I didn’t even remember having. It is life changing.
I suppose my perspective is now that we have dose reductions for a reason and needing one is not a failure, but just another option in this wild world of cancer. I’m thankful for the research completed to prevent it from being all or nothing (like my favorite go to cognitive distortion) and instead an option to continue treatment and still live my life. Allowing me to continue to live with cancer.
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