Sunday, November 17, 2024

Disability Frustrations

  Disability guilt might be a bit strong for how I would describe it but the statements are real. Instead of guilt, it is more frustrations for me. I wanted to share as I’m sure many people going through their own things can relate. 



 While dealing with these frustrations, I still make it a point to throw kindness around like confetti!


Thursday, November 14, 2024

Preliminary Test Results

  So far my blood cultures are negative. I will probably get the final result today and do not expect something different since we know the source was from strep throat. If it was some rare nasty bug, it might take more time to grow, but not strep A. This is a huge win and a great addition to my public service announcement to the doctor ASAP is so important.

 I’m on my Augmentin and another public service announcement, I will be taking ALL of my antibiotics as prescribed. I am feeling better day by day and am to return to work tomorrow.


From the Mayo Clinic:

“Taking antibiotics responsibly: It's tempting to stop taking an antibiotic as soon as you feel better. But you need to take the full treatment to kill the disease-causing bacteria. If you don't take an antibiotic as prescribed, you may need to start treatment again later. If you stop taking it, it can also promote the spread of antibiotic-resistant properties among harmful bacteria.”


 I also had a chest x-ray to ensure I did or didn't have pneumonia. I didn't but they found a "hazy ill-defined asymmetric density" on the left side of my chest which was outside of the chest wall. In my setting of breast cancer, that could be post-surgical changes or concern for something else. I commend this radiologist for reading this x-ray so closely with my current situation and want to highlight they also stated "There is no significant mediastinal widening or evidence of hilar or mediastinal adenopathy. Bones imaged are unremarkable without blastic or destructive lesions of bone." This translates to no findings of enlarged lymph nodes in the chest (YAY!) and no evidence of spreading (metastases) to my chest wall (YAY!). I appreciate this extra care taken to comment on things that otherwise may not be mentioned in a standard chest x-ray.

 Due to the findings of the "hazy ill-defined asymmetric density", my care team quickly got me further x-rays (initial x-ray was anterior to posterior or AP (front to back)) and the further images were PA (posterior to anterior or back to front), lateral (from the side) and oblique (a partial turn) to truly visualize the area. The further imaging did not show the same density seen and the impression was "The previously described density over the left lateral peripheral lung field was related to superimposed soft tissue structures." I'll keep doing my breast checks but know there may be scar tissue that tosses in some scares in there. I'm currently learning the balance between being the girl who cries wolf and not speaking up when I need to.

Posterior-Anterior and Anterior-Posterior Views


Lateral View



I'm feeling better so I'll take this time to do some TL;DR again.
  • Preliminary blood cultures are negative. Final takes another day to grow.
  • I'm on Augmentin for strep throat and PSA to take all antibiotics as prescribed and not stop early when you feel better.
    • This helps to prevent antibiotic resistance and also ensures all bacteria are killed by the antibiotics.
  • Chest x-ray from ER visit showed a "hazy ill-defined asymmetric density" and led to further x-rays. It also showed no lymphatic involvement or spread to my chest bony structures showing extreme care to read results in the setting of my ongoing cancer diagnosis.
    • Those views (see above for details) confirmed that the density was likely due to superimposed soft tissue structures" and did not show further concern for an area of concern.
    • I will still continue my breast exams.
Enjoy your day! I know I will.




Wednesday, November 13, 2024

Hope and Persistence




 This is courtesy of my big sis. Thank you for this reminder!

 Still awaiting results from blood cultures. 

Tuesday, November 12, 2024

Sepsis takes a life every two minutes

  We're currently awaiting the results of my blood cultures to see if the infection went into my bloodstream. This can take 24-72 hours. In the meantime, I'm on Augmentin (Amoxicillin / Clavulanic acid) to treat any bacteria that is in my system, with the suspected culprit being strep throat. Strep throat is actually streptococcus pharyngitis which is an inflammation of the throat (pharynx) which is caused by Group A streptococcus bacteria known as streptococcus pyogenes.


 I also wanted to elaborate on the action of sepsis. This is a review of sepsis caused by Group A Streptococcus but many things can cause sepsis and will result in various presentations. Sepsis is a generally unknown, but serious condition. While undergoing cancer treatment, it is very possible to have an exposure to something that could lead to sepsis. Knowledge is power and time is essential. Bottom line is that sepsis, which was often called blood poisoning, is a life-threatening emergency that happens when your body's response to an infection damages vital organs and, often, causes death. 

"Sepsis takes a life every two minutes. It can look like a routine illness, then quickly change into a severe, life-threatening situation,” said Jennifer Yu, MD, sepsis physician lead for MedStar Health and critical care physician at MedStar Washington Hospital Center.

 An excerpt from the link above which is endsepsis.org:

"Strep A is a type of bacteria that can cause a range of infections, from mild skin infections (such as impetigo) to more serious conditions such as strep throat, scarlet fever, and necrotizing fasciitis (also known as flesh-eating disease). In some cases, strep A infections can lead to sepsis.

Sepsis is a potentially life-threatening condition that occurs when the body’s response to an infection damages its tissues and organs. It can be caused by many different types of bacteria, including Streptococcus pyogenes (also known as group A streptococcus or “strep A”)."


 Known your SEPSIS signs and symptoms! It could save your life!


 But with all of this, as long as you get the care you need when you need it, your body is amazing and CAN HEAL!



Monday, November 11, 2024

Tales from the Emergency Department



 Well, I’ve done great so far, but today was the day I finally had to make a trip to the emergency department (ED). Congestion and sore throat with possible strep, bone, muscle and joint pain, chills and then my temperature started to rise. I decided to get my buns straight into the ED where they’re working me up for strep and possible sepsis. 

When I was in quality, one of the quality measures was getting fluids and antibiotics in a potential person with sepsis within 1 hour of arrival. They did it! This continues to show the great care I get right here in my town of Palmer, AK. No big cities needed. 


 Some of you know but some of you don’t, that my mom had sepsis. She was within hours of potential death by the time she got to the hospital. Her situation was a septic hip joint. She survived but it’s very important to know how serious sepsis is. She and I both run a lower temperate normally so when we both got over 100 degrees, we knew it was an issue. It helps to know your baseline temperature for that reason.


 My oncologists office told me to get to either them (they’re not open) or the ED if I had a temperature over 100. I didn’t hesitate and the ED team says I did the right thing. Don’t hesitate! Get the care you need!

Sunday, November 10, 2024

Had a rest because I needed it

  The following images resonated with me, and I know they will for others with chronic illness. Even tackling the laundry can feel daunting. I've stayed quite healthy throughout my treatments but feel something coming on. It's draining my energy. I'm going to keep moving and currently have some chicken noodle soup on the stove with ginger and garlic to see if I can kick this thing.


Maybe I'll do more tomorrow.  


Maybe not, we'll see!




Friday, November 8, 2024

Journaling


 I took a moment to begin reading my blog from January forward. It was then that I remembered the power of journaling.

An excerpt from this website:
 to journal, means you keep your own thoughts, beliefs, feelings, insights, emotions – just everything you have built up within you, out on record.
with the beauty of journaling, there is no right or wrong.

yep, that means you can do it however you want to.

when you journal you are creating an opportunity for yourself to find out who you actually are and discover your true self.

by beginning to journal, you can find out what you genuinely like, what brings you true joy, your true passions in life, what emotions you have, how you are actually feeling, what you have suppressed or repressed to stay ‘in line’ the norms of society.

you are able to express your true self in a healthy way that lets you understand who you truely are, and what makes you the unique person you are.

 It also allows you to:

 I love the clarity that comes with putting my thoughts down in my blog (my way of journaling) and hoping that it helps others provides me with gratitude so it’s a double whammy. The type of double whammy I like.



  Give it a try. You might find it helps!



Wednesday, November 6, 2024

I am deliberate and afraid of nothing

  "I am deliberate and afraid of nothing" is stamped on a bracelet that my sister gave to me at her wedding. She gave all of her bridesmaids bracelets with a message that best reminded her of them. Mine couldn't be more appropriate.


 I am not afraid of cancer. I am not afraid of getting a secondary cancer. Most importantly, I am not afraid of dying. I say that without wanting to die, but when (not if) it happens, I'll be ok with it. I've done quite a bit and accomplished a lot in my short 39 years. I am fortunate to know what love is. I fear not the unknown.


 My bracelet says "afraid of nothing" but there is one thing I am afraid of, and that is having my parents have to experience losing a child. That was one of the first thoughts I had when I was diagnosed and knew I had to have extensive treatment. No parent should ever have to lose a child, especially mine.



Monday, November 4, 2024

Facing Yourself

  I am beginning to intertwine my pre-cancer self with my post-cancer self, now that I have enough energy to work and still use my brain the rest of the day. My therapist might call this a break through, I just call it about damn time. Old Stephanie isn’t gone, she’s just a bit different. 

 For managing tasks while prioritizing for optimal energy conservation and concern for fatigue that can easily flow into the next day, I find the Eisenhower matrix very helpful. Maybe you will too!


You can find many free templates online, but here’s a link to a site I use for many templates:
 https://www.vertex42.com/ExcelTemplates/eisenhower-matrix.html


Saturday, November 2, 2024

Hormones

  I bet only the women open this post. Sorry guys. I wish I could run for the hills as well when I hear this word, but I can’t. 


 After radiation was complete, and I recovered one month, it was time to make the decision on my ongoing oral hormone suppression for the next 10 years. My choices were:

Option 1: Tamoxifen for 2-3 years then an aromatase inhibitor 7-8 years



Option 2: Aromatase inhibitor for 10 years



Option 3: Luperon shots weekly to suppress ovarian function with an aromatase inhibitor for 10 years

 

 Labs to assess my ovarian function were important for this decision, as one must be identified as pre-menopausal, peri-menopausal, or post-menopausal - here’s some info from google AI:

 Ovarian function labs measure levels of follicle-stimulating hormone (FSH), luteinizing hormone (LH), and estradiol to assess ovarian reserve and reproductive health:

  • FSH
    • A hormone produced by the pituitary gland that helps mature follicles in the ovaries
    • High levels indicate post-menopausal state
  • LH
    • A hormone produced by the pituitary gland that causes the mature follicle to rupture and release an egg during ovulation.
    • High levels indicate a post-menopausal state
  • Estradiol
    • A form of estrogen that is measured in picograms per milliliter (pg/ml).
    • The lower the level, the less estrogen one is producing, can indicate post-menopausal state
 Without losing even more people to this very sensitive subject, due to my age and considering the chemotherapy I am on is still suppressing my hormone levels, we're assuming I'm in peri-menopause so I opted for option 1 which puts me on tamoxifen for 2-3 years. The benefit rather than going straight to aromatase inhibitors, simply put, is that tamoxifen has less chance of osteoporosis or cardiac issues than aromatase inhibitors, so we'll keep my bones and heart as healthy for as long as I can. I'm learning that every system pays the price when it comes to cancer treatment!